Monthly Archives: January 2024

January 30, 2024

More in 2024: More of God’s Plans and Purposes For You and The Word of the Year (Episode # 461)

As we embark on the new year, Dr. Karen shares her words of gratitude from both a business and personal perspective. She is thankful for her family members, new and old, and for clients who are committed to creating positive, profitable, and powerful workplace cultures and environments. Dr. Karen also shares her business visibility objectives and a template for planning the year.

Listen to this episode to hear Dr. Karen unveil “The Word of the Year” and its Biblical context. This year’s Word is a catalyst word that begins a Trifecta of benefits. The Word is rooted in the foundation of the past words of Vision, Impact, Abundance, and Possibilities. So, what is the Word? Tune in and Discover!

Start your new year in a conversation with Dr. Karen: Dr.Karen@transleadership.com

January 22, 2024

Pat D’Amico: How To See And Appreciate The Whole Person At Work (Episode # 460)

The Voice of Leadership (Podcast & YouTube) /Dr. Karen Speaks Leadership (TV Show and iHeart Radio) | Pat D’Amico | Whole Person

The Voice of Leadership (Podcast & YouTube) /Dr. Karen Speaks Leadership (TV Show and iHeart Radio) | Pat D’Amico | Whole Person

 

Pat D’Amico, Founder and CEO of About-Face Development, brings over 30 years of experience in the Fortune 500 medical device and pharmaceutical industries, having worked with renowned companies like Johnson & Johnson and Medtronic, as well as startups. His diverse roles have spanned sales, commercial operations, recruiting, marketing, and training, including achievements such as being a four-time President’s Club winner. Pat’s expertise lies in designing and launching new departments within large organizations.

Beyond his corporate success, Pat’s leadership journey includes serving in the US Army as both an enlisted soldier and a commissioned officer, earning him recognition for his leadership in combat and humanitarian operations.

Pat holds an MS in Education (Instructional Design) and a BA in World Politics. He is also a member of the Entrepreneur Leadership Council. In today’s episode, he shares his unique “whole person” approach to leadership with Dr. Karen, discussing how to motivate employees, retain top talent, and navigate the challenges of ego-driven leadership.

Contact Pat D’Amico at:

Listen to the podcast here

 

Pat D’Amico: How To See And Appreciate The Whole Person At Work (Episode # 460)

Did you know that your unique background of life and leadership experiences prepare you for our complex world of executive leadership decisions? My guest has multiple lenses through which to view leadership opportunities and dilemmas, and to provide value to his C-suite clients. Pat D’Amico is the Founder and CEO of About-Face Development, and he is a Senior Performance Consultant for Matrix Achievement Group.

With more than 30 years of experience in the Fortune 500 medical device and pharmaceutical industries, he’s worked for Johnson & Johnson, Medtronic and startups. Pat’s roles have included sales, commercial operations, recruiting, marketing and training. As a sales manager, Pat was a four-time President’s Club winner. His specialty is designing and launching new departments, even within large established organizations.

Pat’s leadership experience also includes serving as both an enlisted soldier and a commissioned officer of the US Army. After his commissioning as an officer, he served overseas, leading soldiers in Panama, Cuba, and the Middle East. He received numerous recognitions for his leadership in combat and humanitarian operations. With strategic roles spanning Fortune 50 companies to startups, Pat’s cross-functional and cross-business experience provides him with a unique perspective on what makes individuals and organizations commercially successful.

Focused on leadership and management development, he now serves as an Executive Coach to C-suite leaders. Pat holds an MS in Education, specifically in Instructional Design, a BA in World Politics, and an Executive Coaching Certification from the UC Berkeley Executive Education and Berkeley Executive Coaching Institute. He is a frequent speaker and author on topics related to learning and development and leadership, and is a member of the Entrepreneur Leadership Council. Pat, welcome to the show.

Thanks, Dr. Karen. It’s wonderful to be here. Thank you for that amazing introduction. Who’s that guy?

We’re going to find out a little bit about that guy. Pat, I’m so delighted to have you here. As I said, you have multiple lenses through which you look at leadership, and I want to start with your corporate lens and ask you about your career in the pharmaceutical and medical device industries. Tell us a little bit about some of the significant roles you’ve had, and most importantly, the impact that you’ve had in the organizations where you served.

A Non-Traditional Career Path In The Pharmaceutical And Medical Device Industries

Thanks Dr. Karen, and you did such a wonderful job of the introduction, so I appreciate that. I’ve had a pretty non-traditional, I think, career having spent 30 years in the medical device and pharmaceutical or what we refer to as the life sciences area. The reality is that typically, you’ll see folks in the commercial space either do a sales leadership path, maybe do a little bit in marketing, maybe do something in sales training. I’ve really had a career that’s afforded me the opportunity to have many different roles. I’ve spent quite a bit of time in the area of sales operations. Pretty early in my career as a director of sales operations, that was a new department, which is another really keystone of my career, which has been super fortunate.

Over half of my roles have been newly created. I’ve had an opportunity to build these new departments within organizations. Early on, I built a sales operations department at J&J for one of the medical device companies when we transitioned and expanded the organization. That was a fun role to really bring on new, younger experienced folks to build that department. That’s one role that I recall back to. Probably one of my most fortunate was when I received a call also early in my career that Johnson & Johnson at the time had centralized recruiting for all functions except for sales. Someone reached out to me and said, “We’re looking to maybe try this out and centralized recruiting for sales in the US. Would you be interested? We will give you money for six months and if it works, great, and if it doesn’t, you’re going to have to find another job in J&J.”

I was up to the challenge. That was a great experience. I formed this sales recruiting department centralized for J&J in New Brunswick, New Jersey. We supplied candidates for all three sectors, so pharmaceutical devices as well as consumers. It was a really interesting role to build a new department, with recruiters all over the country. We had initially lost a lot of money. I always like to say we lost $1 million in our first year but became profitable in year two. That was a positive. That was an interesting role.

I left J&J and my reason for leaving J&J was to take a job as a VP of commercial operations for a startup. That was one of the roles in my career that I really learned the most about the corporate environment because when you work for a startup, you wear a lot of different hats. I was responsible for meetings and conventions, for training, for corporate accounts. That was a role that really, I think, significantly expanded my experience in the sector. Eventually, that organization was purchased by Medtronic and I spent my last eight years there.

Primarily, at that point in my career, I had really begun to focus solely on learning and development. I originally transitioned the startup into the organization and then, during a restructuring of Medtronic, where they took all of the operating companies within the cardiovascular group, put them into one. I assumed, again, a new role there that had not existed, where we were responsible for providing skills training to North, South and Central America. It was a pretty big job, really interesting, and very satisfying because, again, it was new. I was able to set things up, do some trial and error, see what worked and expand the group. Those are just a few examples over the last 30 years.

Navigating Organizational Politics And Understanding Stakeholder Needs

Thank you for describing that journey over the last 30 years. I want to unpack a few of the items that you talked about. We said earlier that one of your secret powers, if you will, or superpowers, is starting new operations within, let’s say a bigger rubric or operation. You described one where if it didn’t work, you’d have to find a new job. Tell us a little bit, Pat, what’s important in doing a startup? Particularly in an already existing corporate business, what are some of the skills you have to have? What do you have to do, what do you have to learn to be successful?

That’s a great question I hadn’t thought about. The first thing that comes to mind, Dr. Karen, is a term that J&J used to use, which I’ve continued to use, which is organizational savvy. Political astuteness also means the same thing that is often used and it’s really understanding how to maneuver within a large corporate organization like Johnson & Johnson. A lot of processes were established. There were a lot of things that were being done. You’re trying to start a department, which more or less is moving work that was being done somehow else and moving it within. One of the challenges with this particular role was recruiting and finding candidates was being done externally. Sales managers were going to external sources to identify candidates.

The first thing is you really have to convince these folks that you can provide the types of candidates, the quality of candidates that they’re looking for. Understanding the market, doing enough research to really ascertain where do we find these great candidates and how are our competition, which was external recruiters doing that. It also resulted in a lot of partnerships with external recruiters as well. Can we negotiate contracts that are more favorable than what we’re currently getting so that we can support the department financially, but also meet the needs of the hiring managers? Those were some of the things in that particular role that was interesting.

One of the funny parts of that is I was living in the South at the time where I had lived for a long time. I was originally from the North. I had been living in the South for years and I was looking to get back to a little closer to home. Part of this decision was they came to me and said, “We’ll move you and at least if this doesn’t work, you could try to find another job up here because you’ll already be located back in the North.” That was part of the reason that I took the role as well, or that it seemed interesting. Back to your original question, I think that understanding how to maneuver within the organization, who are the folks with influence and how do you get early wins with folks that have influence, which I think applies in so many different areas.

I think this is a really huge conversation, by the way, and an important one, the whole idea about organizational politics and the whole notion of influence. Part of influence, and you mentioned it, is really understanding what that partner or stakeholder is really looking for and what they want, and then being able to show them how you can deliver on that. Say a little bit more about what does it take to really influence people and to be a good partner.

That’s a great question because in my role now as a consultant, I often will say, folks come to me and they’ll tell me what they think the gap is. About 50% of the time, they’re right. That’s probably pretty accurate. The first thing is you want to understand from those stakeholders what do you think your concerns are and what it is you’re trying to accomplish. Really, the expertise that you bring, at least for me as a consultant, the expertise that I bring is my ability to dig in, to ask the right questions, talk to the right people, talk to the influencers, and find out what are the actual gaps.

Usually, there’s some connection to what you’re initially hearing, but inevitably, you need to be able to come back and you need to be able to communicate in a way that makes them feel comfortable that yes, what you shared with me as some of your concerns and your goals are valid, and here’s how we’re going to try to meet that. While at the same time, also understanding the other things that you uncovered and ensuring that those are included as well. You do address the larger problem, which what they shared with you initially may only be a piece of.

What you’re talking about right now is really important. The importance of questions, the importance of going deeper to get to the discovery and so that they can see, “That’s the value add of bringing Pat into the picture because we’re going to see what we didn’t see before. We already know what we know and there’s more we need to know,” if you will. That’s what I hear you talking about, Pat.

You raise a really good point here, which is that in my role as a consultant, and I think for all of us when we’re looking at this, what’s the expertise we bring? We need to be very aware of what that expertise is. You also said asking questions. When I’m facilitating groups, they get really tired of that. I always say, “What’s that three-letter word? Ask is that three three-letter word.” Great leaders, and great consultants speak half as much as they allow other people to do. They ask a lot of questions, they try to determine and try to understand whether it’s their customer’s needs, whether that’s internal or external. Really understanding what it is that they’re trying to get at and making sure you understand what they’re hoping to accomplish. You just can’t be successful without understanding their need. Really making sure you’re satisfying that need.

Let me ask this. When you think about the whole of your corporate experience, and we’re still talking about that, what are some additional key lessons that you learned from your corporate life that you now apply to your consulting world? Of course, one of them is how to ask these questions, how to develop the relationships and communicate with people, listen and so on. What else would you say you learned in Corporate America that you use now?

All organizations have their demons, and they all think that they’re the ones that have them. I think that one of the most valuable things, when you’re working with corporations, is to help them understand they’re not the only ones facing the challenges they’re facing. Very often, they think that’s the case when the reality is that’s very seldom, if ever the case. The challenges are common and they’re common at different points in time. The challenges that I was facing in the corporate environment 15 or 20 years ago are slightly different than some of the challenges we’re facing, but the challenges being faced are also being faced by everyone.

All organizations have their demons, and they all think they're the only ones that have. Click To Tweet

Once you understand that and once you have experience with helping address those, you become extremely valuable to organizations. I think you just mentioned it. One of the things I look at is I look at it and think to myself if an organization is facing a challenge and with the work I do, the chances are I’ve helped other organizations address the same challenges, there are answers out there. They’re not esoteric, they’re not, “We’re never going to find it.” The answers are out there. I think the key is you have to be working with, either internally or externally, the folks that have those answers.

The Impact Of Poor Leadership And Lack Of Development Opportunities

I love that because, again, going back to the whole notion of multiple lenses, because you’re out there in multiple places, you’re bringing expertise and lenses from multiple places that can help your clients as well. While we’re talking about the source of challenges that organizations are facing, let me ask this. What do you think are some of the primary issues that organizations face nowadays? Particularly some of the reasons may for some competencies and leadership that are lacking right now. How would you talk about that?

I really believe one of the biggest leadership challenges nowadays is turnover because I think undesirable turnover, losing people you don’t want to lose, is absolutely the result of poor leadership and management competency. We know this to be true. There’s plenty of research. There’s no doubts on that topic. I think organizations need to be honest with themselves and ask themselves what does their leadership competency look like and how is it negatively impacting the organization?

Undesirable turnover, losing people you don’t want to lose, is absolutely the result of poor leadership and management competency. Click To Tweet

There is a war for talent that is real. Keeping folks is becoming one of the biggest challenges they face. I think, Dr. Karen, we’ve lived through that time period where we thought giving our employees more perks would keep them. I think we’ve learned that that’s not the case. I think we’re past that now. We’re back to, in my opinion, the original question, which is why do we lose good people? I think it’s because of poor leadership. There’s tons of research to show us that that’s the case.

Yes, as a matter of fact, I know that you have some particular insights about what the literature actually shows on this very topic of why people leave and how that literature and information can inform the leadership development processes that people use in their company. What are some examples of what does poor leadership look like and how can people fix it?

First, on the data, because I think there’s an interesting thing changed that’s happened. Let’s be honest, during the Industrial Revolution, people left jobs for their own personal safety. My grandparents worked at the steel plant and, they worried about their physical safety. After that, the number one reason people have left jobs is their immediate manager. That’s always been the case. In fact, it’s been so much the case that it’s never even been worth talking about, the number two reason. However, a few years ago, we started to see the number two reason moving up, not going to overtake number one, but the number two reason people leave jobs is a lack of development. I think those two go hand in hand. If you are not developing your leaders, then you’re going to lose good people.

Ironically, not developing people is the second most common reason that folks are leaving organizations. I think you have to look at that and understand from a data perspective. Let’s admit, if we have good people leave, we’re losing them. Not because we’re not paying them enough and not because we’re not giving them enough perks.

We’re losing them because they’re immediate manager that they work for does not understand them, does not understand their motivations, does not understand what gets them out of bed every morning and what makes them want to go do that job. That’s really the biggest thing, in my opinion, that just we have to address because there’s such an incredible lack of leadership and management development across all sectors. I work primarily in life sciences, but really it’s impacting everyone. It’s pretty incredible how much it lacks in organizations.

That’s really a very good point. One of the things that I’ve observed is that with the younger generations that are in the workplace, not the Baby Boomers, this expectation for development is particularly high and particularly strong. When it’s there, it’s an almost an inoculation, if you will, against those people jumping ship prematurely.

It is. Here’s a question for you. Do you sometimes get the impression in organizations that the leadership thinks when they hear lack of development, that they think that people want to get promoted too fast? Have you heard that?

I have heard that. I think they are missing a whole segment of possibilities in between. It’s not the promotion per se. It’s the building blocks that lead up to the promotion.

I wholeheartedly agree because a lot of times, when I share that answer of a lack of development, right away, someone or people in the room will say, “They want to get promoted too quickly.” No, I’m not going to say that may not be a separate challenge, but it is not one and the same with wanting to be developed. You need to have these processes in place. I was wondering if you’d heard the same thing because it always blows my mind and I’m like, “No, those are two very different things.”

When organizations confuse that, the promotion, if it comes too early, can also be a barrier because a person may not feel ready for it. They may feel like they don’t have support. They don’t have the development that they need to be to show up well in the promotion. The development piece is crucial even to success in the promotion is what I find.

I will tell you that there’s an epidemic, not that this is new because I’ve been seeing it for many years. Organizations just have such a habit of promoting people. To say they’re not ready is a complete understatement. The reality is, “You’ve been a good individual contributor, so here you go. We’re going to promote you, figure it out, ask some peers.” To your point, it really sets people up for failure. You want them to be prepared enough to be marginally competent and marginally confident in their skills to actually lead others, but I just see so little of it.

A Holistic Approach To Leadership And Understanding Employee Motivation

That’s definitely an opportunity in the workplace so that companies can find themselves in the position where they are a preferred employer because they’re providing what others don’t provide. I do think you’re onto something when you talk about developing people in the workplace. Let me change gears a little bit, and I want to dial back to your military experience and the time that you were in the Army. Tell us a little bit about what you did there, the impact you had in the Army, and what you learned from that.

The military really changed my life, Dr. Karen. I was not a great academic high school student, although I had had some leadership opportunities. When I was getting ready to go to college and my parents didn’t have any money to send me and I didn’t have grades to pay for it, the Army looked like it was a great avenue for me to fund college. I enlisted in the Army and then was given a two-year scholarship. I went to Valley Forge Military Academy and it was there that my whole life really changed. I matured, but most importantly, I was given an opportunity to lead in my second year there a company of around 140 young men. At the time, it wasn’t co-ed. Fortunately, it is now. I had an opportunity to lead 140 young men and really learn a lot and make a lot of mistakes.

Having that opportunity at that young in age really gave me exposure to myself and what I really enjoyed, helping other people succeed, helping other people develop their leadership. At the same time, I was developing my own. I was young, I was eighteen years old at the time. That really had an impact on me, and it was really that experience that led to my active duty in the Army. I served in Panama after the invasion there and did law enforcement support for Panama City, which was really interesting work. I went to Desert Shield and Desert Storm. I also did some humanitarian missions for the Haitian migrants. I was stationed in Cuba for a while. That entire experience from a leadership perspective, what it really showed me was, and I think we may get into this because I think we’re missing this now, is that you were responsible.

I was responsible for the whole person. It wasn’t just their life at work, which we never referred to it as work. How they were performing their duties was my responsibility to coach them on. If they bounced a check at the post exchange, I got a phone call to go sit down with them and maybe their spouse. If they were having personal issues, it wasn’t unusual for me to go over and talk and see. It was this holistic approach to your employees and understanding that work was only a part of it but understanding that whole human was really critical.

I think it’s something we’ve lost now, and I’m a big proponent of it. Understanding what really motivates this person in their life because don’t tell me it’s money because I can almost guarantee you, it’s not. Every individual’s motivated by different things. Understanding that at the outset helps you get not everything out of them for work, but helps you as a leader so you’re giving them and finding ways to give them what it is that satisfies their needs.

The Importance Of Empathy And Flexibility In A Post-Pandemic Workplace

You’re talking about a couple of things I think are really important. You’re talking about what motivates people, which we were also talking about from your corporate experience and what you learned there. In addition, you’re also talking about what other factors influence a person and their success at work and their choices. When I think about the military, it took a while for the military to realize that understanding what was of interest to the spouse affected the soldier, as an example.

When you unpack this part about what are those other influences, think about coming out of this post-pandemic time period that we’re in and where people are facing all kinds of challenges and issues they may have close relatives who are ill, people may be dying, all kinds of things may be going on. What does that workplace need to think about in ‘s time that’s beyond just the day-to-day work that is more holistic about people?

I think it starts with empathy. I think that understanding, having your leaders in your organization, those that lead the organization, understanding the importance of empathy, appreciating what that person is going through or been through, and the pandemic’s a great example. We could all probably give numerous examples, both work, and frankly, in our own personal lives. We all grappled with and maybe reacted to the pandemic differently and we’re impacted by it differently. Understanding what folks are dealing with, what their concerns are, how it changed their lives. I think the easy one is to look and go, “Everybody wants to work at home now.”

The reality is that’s a challenge everybody’s facing. I work with a lot of commercial organizations who have salespeople. Think about that a second. We’ve gone from a place where the pandemic now results in most people preferring to work remotely all the time and I’m working with organizations who essentially need to find people willing to work outside the home all the time. Maybe not in an office. We tend to think, “Office or home?” There’s a whole other area of people working out there who actually have to go places and meet with people every day. At the same time, because of the pandemic, that’s gotten a little bit tougher to see folks. Understanding what motivates individuals and how you can satisfy their needs because somebody may believe, “I want to be at home and I want to work remotely. I don’t want to be in an office.” What is it about being at home that you really enjoy?

Is it simply the flexibility? We can offer you that same flexibility. It’s not an all-or-nothing. I think right now, we’re struggling a little bit with this notion of, “People just don’t want to go to the office.” No, let’s understand what it is they enjoy about it. Maybe it’s the flexibility. Maybe it’s the fear. Maybe some people are actually still a little apprehensive. Some folks just got very used to being alone. They need a little bit of encouragement to go back. There are so many different things that play in here and I always hate the discussions of like, “It’s this or this,” or all or nothing. It’s never all or nothing. Life is all about compromise. As leaders in this organization, to be successful, we compromise with our customers. We need to compromise with our employees.

It's never all or nothing. It's all about compromise. Click To Tweet

Maybe one word I sometimes use is really about finding the solution that’s not obvious where really there’s a win-win that’s possible both for the organization and also for the employee. I’m thinking back to your experience with J&J when it’s like, “You’re in the South and you’re working on this new project and it’s with the possibility that you could move back up North where you want to be.” That was paying attention to something that was important to you. What you’re saying is the organizations need to listen a little more deeply to find out what their employees really want. What is it about working from home that’s the real draw? Maybe in these other solutions, they can add that element in.

It ebbs and flows. In the early ‘90s when I first entered the industry, it was a tough job market for the job seeker. Corporations were doing really well. They had the pick of the litter. I remember when I joined J&J and I went through the leadership development program, I remember them saying to me, “Here’s the deal. Your first offer for promotion you can say no to, but you can’t say no to your second.” The message was, “That first location, you better really not want to go there because wherever the second location is, you’re going.” I remember that sticking with me thinking, “You don’t have any idea where that second location’s going to be if you say no. We used to say you had to be blindly relocatable. That was the term we used.

If you wanted to get promoted, you had to be blindly relocatable. I think we abused that to a significant extent. I think we learned that years later when the market became a job seeker’s market and people were like, “Now I don’t think I’m going to go there,” or, “No, I don’t want to go there. I need a better location.” I think you have to be fair. It’s a give and a take. It’s a compromise. I was in the South, I was ready to get promoted and I assumed I would have the ability to go anywhere that was open. My boss came to me and said, “Here are your four potential places you’re going to end up.” I’m like, “That’s it? Those are my choices?” It worked out. I often say I think we abused employees then, and what goes around comes around

I think what the option is now, and this is what you’re talking about, is to really be in more partnership even with the employees, to talk about a greater panoply of possibilities and options that are out there so that they’re part of the decision-making equation at a greater level. Therefore they feel like, “Okay, I’m going to New Jersey and that’s where I want to be,” as opposed to, “No, I did not want to be in South Africa,” or wherever.

You want both parties to feel good. Now you mentioned that you’ve seen a lot of this. You said something interesting. You didn’t use the word unique, but other options. What have you seen that have been unique in the standpoint of how to meet an employee’s need?

I think it’s exactly the optics you’ve been talking about. To have in your mind that you want to meet the employee’s need so that the corporation benefits and the employee benefits. Where in the Venn diagram do the circles overlap in terms of what motivates them, what’s meaningful to them in terms of the work that they do, and how they are showing up and finding the sweet spot that works for the whole system?

I have seen companies really create powerful examples of the future that they didn’t come to the table with originally and that the employee didn’t come to the table with originally, but it’s because they engaged each other, they talked about it and they understood what the other needed. They created what I call the third solution, which was something that was a win-win. Yeah, absolutely. For sure, I think your notion of thinking of the employee in a holistic way is very relevant in today’s times.

Going back when you asked me the question of the military, that’s one of the greatest things I picked up when I moved to the corporate sector. It’s an understanding that yes, this person is an employee, but they’re a human being and there’s a lot of other things playing into what’s motivating them. When an employee is not performing, to me, it’s never a question of bringing them in and hammering them and reminding them of what they already know.

If they’ve been a good performer, the question is, “What’s going on? What’s happening with you? What can I help with? What are the barriers?” I often tell leaders, “If you want your people to succeed, even your top performers, ask them the question, ‘What barriers can I remove for you? What is getting in your way?’” The reality is I can’t do their job, but I need them to do their job for me to be successful as a leader. Sometimes the best thing I can do is help them remove things that are preventing them from being successful.

If you want your people to succeed, even your top performers, ask them the question, 'What barriers can I remove for you? What is getting in your way?' Click To Tweet

I love two things you just said right now. One is be curious about what the person’s experience is and what’s going on. Number two, figure out how you can facilitate their success. That might mean removing something that’s an impediment. That’s really powerful in terms of how to be more holistic in thinking about the employee as a whole person and not just what I would call an interchangeable cog in the wheel. I think that thinking is what has really adversely affected some employers in today’s world.

I would agree. On that first topic, because I see this so often. If you take two employees, one here and one here, and they look the same on paper. Let’s say they’re same years of experience in the industry, they’ve generally had the same roles. Many leaders tend to look at them and assume, “When I give a task to the team, those two are going to have the same experience and know how to do that.” Nothing can be further from the truth. You go into concepts like situational leadership, which I do like. It’s a little complicated, I think, as the rubber hits the road. What I do like to tell people is, when you assign a task, you need to ask each individual, “What’s your experience with this task?”

It’s not going to line up like you think it will. Those that have X amount of experience are both going to those two people are going to have the same. Very unlikely it doesn’t happen. As an example, I was working with two vice presidents of sales. On paper, they looked somewhat identical. In the industry in the same time, but in the same type of roles. It was coming to around that time of the year where the realignment of this sales force were happening.

I spoke to the first one and it was a very brief discussion. She said, “I’ve got to go through realignment. We’re doing this. We’re doing that.” It was very clear to me that she knew exactly what was going on. I get on the phone to coach the other one, and I wrongly was just under the assumption, based on the conversation I’d had with the other leader a couple of days before, and they were similar, that he would have the same experience.

We reached a point during the discussion where I sensed something and I said to him, I said, “I’m sensing you’re a little apprehensive about this realignment.” At that point, he opened up. He goes the reality is, “I’ve never been responsible for a realignment.” In my mind, Dr. Karen, I’m like, “How is that possible? How did they get to this point?” I mean at much lower levels. I said, “That’s very interesting.” He went through an explanation and said, “I’ve had this role and I missed it here and I missed it here,” and it let me know that the way I coach those two people was very different. In one case, the first one, I’m just supporting her. “Is there anything that you’re challenged with?”

With the second one, I had to go back to, “Let’s talk about how this process works and what your responsibilities are.” Normally as a coach, I’m trying to get them to come up with the ideas, but the reality is, I go, “I have to take my coach hat off. Is that okay? I become an advisor here. Here are the things you need to be thinking about, here are the things to expect.” It’s a long-winded way of getting back to two people with the same background, had very different experiences with the task being assigned, so you can’t assume that those two people are going to know exactly what to do in that circumstance.

I love those examples. Thank you for giving the specific examples. It really demonstrates why the curiosity and the question asking and the real appreciation for each individual journey and looking at them as whole people helps to figure out what to do next and how to facilitate their continued success. I love the fact that you said sometimes, you may be the coach that’s bringing it out of them, and other times you have to be the advisor. You’re the consultant that says, “Here’s how this goes. Here’s what’s next.” I think we have to do both if we really are going to serve our clients in the best way. I really appreciate you mentioning those two examples as an illustration of what you’re talking about.

As an Executive Coach at Berkeley and my certification there, I’m a big proponent of their model, which is the types of roles you play as a leader. One role is a director. That’s where you’re dealing with an employee who’s never done this before. You’re going to have to tell them exactly what they need to do. The next one is an advisor, what I just described. Maybe they have some experience, maybe they have an idea or two, but you’re probably going to be trying to feed them. You probably have to feed them the right answer. The third role is the coach, where they’ve hopefully got the experience. Now you’re asking them to call on their experience and come up with the best course of action on their own.

The last is supporter, which is my example. Somebody who’s done it, they know what was expected of them. You could say, in a perfect world, that for each task, people will move through those four. At first, you tell them how to do it. The second time, maybe they have some ideas, but they don’t know exactly the third time, maybe they can figure it out. The fourth time you’re just there for them. The point being, you never know until you ask, “What’s your experience with this task? What’s your confidence with this task?” Those are the two questions I always like to ask.

Yes, and I love this because it’s really does harken back to the Hershey Blanchard Situational Leadership Model because somebody may come into a situation where they have the experience at a high level, or they may not. They may start with you further down the path on the subject because of their past experience, or they may need to start at the beginning.

A Leader’s Greatest Mistake: The Dangers Of Ego and Unrealistic Promises

Our whole task is to figure out how to be with them where they really are, not where we want to be or where we might want to start. It’s the flexibility of the consultant, it’s the flexibility of the advisor to really understand those dynamics and provide the right services. Yeah, great example. Thanks, Pat, for sharing that. We’ve been talking a lot about what has made you successful over the years, and we know that we learn a lot also from mistakes. Tell us a little bit about in your own journey. What’s been your biggest mistake?

I am a huge proponent of human nature and human research into human beings. We know that we learn more from our mistakes than our successes. We learn more from our failures. We take them more to heart, they’re more impactful. I make no bones about the greatest mistake I ever made. I was 22 years old and we were leaving after the invasion, after Iraq invaded Kuwait. We were leaving to go over to deploy to the Middle East.

I had already taken this platoon to Panama, so I was feeling pretty confident in their readiness. They had performed really well in Panama, so I was pretty confident. That morning, Dr. Karen, we we’re standing out there, it was in October. It was a cool morning in Virginia. I had my entire platoon in front of me. Behind them were all of their families, their wives, their mothers, their children, and their fathers were back there.

As I would’ve normally done, I walked to the back of the platoon. We were just about to leave, and I walked to the back of my platoon and I just said to all of them, “Please write. That means a lot to them. I’ll try to make sure they can write back as often as possible.” Dr. Karen, as I’m talking, and in that moment, I said the following, “I promise to bring your sons and fathers home alive.” I couldn’t believe those words had left my mouth. I couldn’t believe I just made a promise that I had no way to guarantee I could keep. I lived with that promise for six months, every day knowing that I had made this promise.

The real moment for me was the day the ceasefire was called, we’re sitting in a tent and we had the little radio hanging from the pole in the tent with Armed Forces Radio. They made an announcement saying a ceasefire had been called. At that moment, I was like, “This promise I shouldn’t have made, I’m going to be able to keep.” Within seconds, the ground shook. There was an explosion inside our camp.

I grabbed my helmet and my rifle, and as I was running out the door, I was like, “I can’t believe this is happening right now.” Fortunately, there were a few casualties in our battalion, but not in my particular platoon. Here’s the truth, Dr. Karen. I made that promise partially because I thought it would give some solace to these civilians, to the parents, to the kids, to the wives, because I had taken them and brought them back safely from our last deployment.

If I’m being honest with you, I did it largely out of ego. I had so much success as a leader at such a young age in my life that I had this level of confidence that really wasn’t warranted. There was a lot of what went into that. I’ll admit that now that I was overconfident as a leader. It taught me a lot. I learned from that. Never make a promise to an employee or to anyone, but I always think about this related to never make a promise that you’re not 100% sure you can keep. You can say, “I’m going to do my best to do this. I’m going to do my best to deliver this. I have your best interest in mind and I’m going to try to meet that.” Don’t ever say, “I’ll do it,” or, “I guarantee it’ll happen.” That’s the biggest mistake I’ve ever made. No doubt.

Never make a promise that you're not 100% sure you can keep. Click To Tweet

Thankfully, you ended up being able to honor that in spite of the error or the mistake.

I did. I was grateful and told myself I’ll never do that again. One of those things of like, “If you just get me out of this, God, I promise I’m not going to make that mistake again.”

It’s so powerful. I think it’s really interesting what you said about how you can promise that you will do your best. You can promise things that you have control over. In a war situation, there are factors over which no individual, company, platoon battalion or anybody has control over. There are always those other factors. You can’t speak about the unexpected that you don’t know is going to happen. That’s a very powerful example. If you were standing there with your platoon now, given what you’ve learned and you were addressing those families, what would you say?

I love those men. I really still do. Knowing what I know now, I would probably tell their families, “These men are as close as brothers to me and know that I will do everything I possibly can for them. Know that we will do everything possible for each other to keep ourselves safe.” That’s what I would say.

That’s beautiful because just knowing as a leader that you have that commitment is reassuring to a family member. In other words, you’re not going in the war saying, “These guys are expendable. I’m probably going to lose 10%, 20% and I don’t care.” That would be a different speech than to say, “They’re like brothers to me.” That has real significant meaning to someone who’s a family member and who’s listening.

Pat, you mentioned ego and that the reason you said this was because of ego. We know that in the corporate environment, there are a lot of leaders who show up with this ego, as well. What would you say to that leader, and especially having gone through this and having to live in fear, that in hopes that you didn’t lose any guys, what would you say to them about how they might need to walk in order to avoid that? I’ll say the temptation to be ego-driven.

I don’t pull any punches, Dr. Karen, as a consultant. Maybe it’s I’ve gotten older, maybe it’s just being raised in the military environment. I’m never shy about sharing with folks. I’m very upfront. I believe in telling individuals what they do well, but I will not hold back if there is an area that needs to be addressed. What I generally share with folks is an ego-driven leader can have success for a short time, but over the long-term, it’s the employee’s belief that you really care about them genuinely that’s going to make them perform and make you successful. This ties back for me, if I may, other than my father, who is my lifelong role model, my first role model work-wise was a gentleman by the name of Sergeant Major George Didi.

He actually passed away a couple years ago. He was at Valley Forge Military Academy. He taught me what I have held as the most important leadership lessons. Now, maybe it was because they were the early ones, but his number three that I learned from him really has driven my entire career. The first two are pretty simple. First one was, don’t mess with people’s pay.

Of course, he didn’t use the word mess because it was the old army, but we’ll paraphrase. He used to say, “Fix people’s pay. If there’s a pay problem, fix it yesterday.” Meaning, people work for money and you got to get that taken care of. His second was when people are off, let them be off. Make sure they know that they don’t have to be doing work. People need time off. They need time to decompress.

The third one, Dr. Karen, for me, is the most important one, which is if you employees truly believe you care about them and are looking out for their best interest, they will perform for you. I believe many of many who are ego-driven leaders, their whole careers, they start that way. There’s not that concern. The thought is, “If I make myself look good, if I drive people to the last inch of energy that they have, that’s going to give me the results I need to get promoted.” I tell young leaders, especially prospective leaders, one of the first things I say to them is, “If you get the greatest satisfaction out of being the one on stage, the one being recognized, the one hearing your name called, leadership may not be right for you right now and maybe never.”

If your employees truly believe you care about them and are looking out for their best interest, they will perform for you. Click To Tweet

You’ve got to evaluate that. You have to get more jazzed. You have to be more jazzed out of watching others succeed, what you’ve helped them grow. Almost like a parent does, some people are not cut out to be parents. Not everyone is cut out to be a leader. When I see leaders with an ego, I usually let them know that in my experience, ego-driven leaders can only be successful for a short time. The truth is, people know if you really care or you don’t. If you don’t really care, you’re not going to have success for a very long time.

That is so powerful. Yes. It’s so true. I think that for leaders to think about their real job, which is facilitating the development and the leadership of other people, that’s really the key. As you do that, you will be successful along the way. It’s all a matter of emphasis and what you focus on. It’s good that you say short-term, because short-term can be a long time, but it’s not for the long-term. People won’t like working for you and there’s more they could do, which they won’t do when you’re such an ego-driven leader. Thank you for saying that and talking about a tough topic that people don’t always bring up.

If I may, one other way I get it this sometimes, if I’m looking for roundabout way, is I will ask a leader some specific questions about some of their employees. “Tell me about what do you know about their motivations. What motivates them? What do you know about what they like to do in their free time?” My experiences with ego-driven leaders, they don’t have a lot of experience. I can back into the conversation and say, “If you don’t understand that about that employee, how do you expect to motivate them to perform for you? Yes, they have a job to do and yes, you’re paying them to do the job, the organization is, but without knowing what motivates them, how are you ever going to motivate them?” Yeah, it’s an eye-opener for some people

The Value Of Community And Creating A Culture Of Care In The Workplace

Perhaps even another way of thinking about it is if what motivates them is how can you create the conditions in the corporation where they can be self-motivated and then do what they really want to do, which is also what benefits the company. I think that also puts the ball in the employee’s court to some extent, and the corporation’s facilitating the success and the development of that along the way. Pat, in the time we have remaining, and one other subject that I really want to get to, we might have to do a CliffsNotes version, but I’d really like to know more about your backstory and your family of origin and your upbringing and what you learned there that informed how you lead as well.

I was really fortunate, Dr. Karen. My parents were wonderful. My father has passed, devastating to me, a number of a handful of years ago. Mother’s still alive and very healthy, so God bless her. I grew up in a very tight-knit Italian community, which wasn’t unusual. Everybody I knew in the neighborhood was Italian and our community really centered around the Catholic church. I was raised Catholic.

That combination of the family heritage of my parents were first generation Americans, as well as the combination of the social circle that the church provided, really gave me a basis for an incredible community. I grew up in an incredible community, I guess, is what I would say. When you did something wrong, everybody knew because it didn’t matter whose parent it was, they were going to reprimand you and your parents were going to find out.

I feel really fortunate because that sense of community that I gained there, I think, carried forward for me as a leader in understanding the importance of community. I don’t think I really fully appreciated it until I was in maybe the Army or a little bit later where I realized that I started looking at leaders who had the ability. I was grateful to have that baseline of the need to create a caring community of people, really had a great downstream impact on the group as a whole because what does it do? It creates an expectation for everyone of everybody’s got to take care of everyone. It can’t always be me. I feel really fortunate that I was raised that way.

I love that because when we think about success in business, you get an organization that’s really too big for one person to do everything. The community has got to be a part of the equation and the step up, or you reach a point fairly soon when you top out on what you really can accomplish and what you can do unless the community is involved. Thank you for saying that and bringing in the lively Italian aspect to make that happen. I’m thinking about all around the table, the food, we’re eating together, we’re nurturing each other. It’s a whole culture, if you will, of how to experience one another.

It is, and that community of closeness also creates when the leader’s not there, other folks being comfortable correcting other people. They’re close enough to be able to say, “You’ve got to straighten this out. This isn’t working for everybody else.” Somebody’s not relying on just the leader to share that. I think that’s really important. It’s, again, the way I was raised.

Let me ask you, who are ideal clients for you? First of all, who are you looking for and how can they reach you to engage you for your consulting work?

Thanks for asking. An ideal client for me are, are folks who realize that they have a lack of leadership and management competency, are looking to better understand what the gaps are. I do not do consulting work that’s off the shelf. I look at every client, I do a full diagnostic, understand what are the challenges and what are the priorities? Also, get that feedback. The ideal client is somebody looking for that. Also, I do a fair amount of executive coaching. I tend to really focus, or I guess particularly from executive coaching standpoint, I work with a lot of folks who are moving from a tactical role to a strategic role.

Very often, that’s like a VP to a C-suite in some large organization, it’s a senior director to a VP where they’re used to doing tactical work and they really need to learn to focus on the strategic thinking aspect of it. That’s my area of specialty in any industry, really. The best way to reach me, thank you for asking, is by email at Pat@AboutFaceDev.com or my business number at (484) 080-500.

What are your final words of wisdom that you would like to leave for my community of corporate executives?

I think it is to be honest and ask yourself, truly ask yourself, are you losing folks because you have a lack of leadership and management competency? To be really honest and look around and say, “Have we given our leaders the tools? Have we trained them and given them the tools to be successful or do they need competency development and leadership and management? Most often, the answer is yes, and they do. Organizations really to be successful, need to make a commitment to addressing the lack of leadership and management competency if they have any hopes of truly being successful and meeting their objectives.

Thank you so much, Pat, for being with me. I appreciate you joining me on the show.

Dr. Karen, thank you. It’s been such a pleasure. Thank you so much.

Likewise. We’ll end the show with a particular Bible verse, which is from 1 Timothy 1:18. This is the Apostle Paul talking to his protégé, Timothy, and Paul often used military references. He says, “This charge, I commit to you, son Timothy, according to the prophecies previously made concerning you. That by them, you may wage the good warfare.” What is the good warfare? It’s the warfare that God is leading you to, and that he’s ordained is the place of operation that he’s chosen for you in your workplace. As you head into that journey with God, take his strategies with you. Use the gifts that he’s given you so that you show up and cause your team and your company and individuals to win.

I want to tell you a little bit about Spirit Wings Kids Foundation, a 501(c)3 nonprofit organization. It’s an organization that provides profound services for orphans and for widows and families across the globe in many ways, and especially in the country of Uganda. I’m speaking with Donna Johnson, who is the founder of Spirit Wings Kids and also a board member. Donna, tell us about some examples of the profound work that you’re doing in Uganda.

Thank you, Dr. Karen. We were just there a few weeks ago and it’s incredible. It’s more than an orphanage. We have a soccer academy that keeps the boys off the street. We have a widow’s program that matches them with children, and it’s just a thriving network of really entrepreneurs and it’s just been such a meaningful blessing to see the work that we’re doing there.

You know what, Donna, what I love about what you said just now is you’re really talking about their whole lives. You’re creating families between the widows and the children, and you’re also making sure they have recreation and something to do with the soccer academy. You’re looking at the job situation and the entrepreneurial aspect. As a businesswoman yourself who’s very successful, you’re right in line with being able to make that difference.

Thank you so much for the difference that you’re making, and I’m inviting everyone reading to go to SWKids.Foundation and donate now. A hundred percent of everything you donate goes to those people who are in need and who are receiving those services. Thank you so much for donating. Donna, thank you for this ministry.

 

Important Links

 

January 16, 2024

Death of Evil Upon the Seashore: Dr. Martin Luther King Jr. (Episode # 459)

In his powerful sermon, “The Death of Evil Upon the Seashore,” Dr. Martin Luther King Jr. shares the story of the exodus of the Israelites from slavery in Egypt as a metaphor for the deliverance of Black Americans from both official slavery and new forms of slavery such as the Jim Crow Laws. In this episode, Dr. Karen shares the words of Dr. King and her insights about the relevance of this 1956 sermon for today’s times. She agrees with Dr. King that:

  • Evil is present in the universe
  • Good prevails over evil
  • God saves us from the Red Seas of life and from those who follow behind us in the Red Seas with intentions to do harm

Listen or watch this episode to consider how you and your organization may best reflect God’s love and light in your workplace.

For a deeper dialogue, contact Dr. Karen at Dr.Karen@transleadership.com

January 9, 2024

A God-Called Marketplace Executive: Fred Sievert, Former New York Life President (Episode # 458)

When Fred Sievert first spoke with Dr. Karen, they did a two part series about Mr. Sievert’s life as a marketplace ministry executive at New York Life and later in his retirement. God has also called and destined you for great workplace impact in His service. We share this rebroadcast to inspire you at the beginning of this new year to seek God for how He wants to work through you in your workplace and in your retirement.

To reach Fred Sievert: storiesofGodsgrace.com
Fred Sievert

January 2, 2024

Sebastian’s Song Revisited (Episode # 457)

The Voice of Leadership (Podcast & YouTube) /Dr. Karen Speaks Leadership (TV Show and iHeart Radio) | Sebastian | Sebastian’s Song

The Voice of Leadership (Podcast & YouTube) /Dr. Karen Speaks Leadership (TV Show and iHeart Radio) | Sebastian | Sebastian’s Song

 

Sebastian was three years old when his parents Michael and Naomi first spoke with Dr. Karen about their concerns for the life of their precious son. Sebastian is still fighting the “incurable” cancer Myoepithelial Carcinoma (MEC). We start the year with this episode to thank God for granting Sebastian another year of life. Now four years old he continues to thrive and play with his older brother Santiago. May God bless Sebastian with many more life-filled years to come. Thanks to all of you who prayed and who now pray for Sebastian.

Give to find a cure for MEC: cureMEC.org

Listen to the podcast here

 

Sebastian’s Song Revisited

What would you do if you got the news that your precious two-year-old son had a rare, aggressive, and incurable stage-four cancer? We will hear about one Albuquerque, New Mexico family’s journey after receiving such devastating news. My guests are husband and wife and the parents of now three-year-old Sebastian. We will also share the many ways you can participate and join them on their journey of hope, healing, and miracles. Michael Casaus and Naomi Natale are the proud parents of Santiago and Sebastian.

Michael is a native New Mexican and has been an environmental advocate, conservationist, ethnobotanist, and non-profit leader for over twenty years. As the Wilderness Society’s New Mexico state director, he brings diverse stakeholders together to protect the land and water that sustains our families and communities. He is committed to public service and has dedicated his career to advancing diversity, conservation, and environmental movements.

He has served on several volunteer boards including the New Mexico Environmental Law Center and the Recuerda a César Chávez Committee. He is a recipient of numerous awards and is a W.K. Kellogg Foundation Community Leadership Network fellow. He now realizes that his decades of advocacy experience have all been in the preparation for finding a cure for Sebastian’s cancer.

Naomi has over sixteen years of experience creating and directing national and international art projects that bring people together to address social issues. Naomi is the founding artist of the One Million Bones project, a social practice work in which over 150,000 people from 50 states and 30 countries created over one million handmade bones to address ongoing genocide and mass atrocities in Sudan, South Sudan, Congo, Burma, and Syria.

In June of 2013, 1,018,260 bones were installed on the National Mall in Washington DC. Naomi lectures in the US and abroad on the power of art to build community and bring people together. Naomi is a TED Global Fellow, a TED Senior Fellow, a Robert Rauschenberg Foundation’s Artist as Activist Fellow, a Carl Wilkens Fellow, and a recipient of an Arts and Healing Network Award. As you can see, they are both very well connected in the community, making a difference in the lives of other people.

Inspiration Behind The Video Of Sebastian’s Story

Before we start our conversation together, I want to first play a brief video clip. For those of you who normally listen to the audio podcast or the iHeartRadio program, you may also want to watch the YouTube or Dr. Karen Speaks Leadership television version of the show to see the beautiful family images in this video. If you’re only able to listen to the audio version, then you will hear Sebastian’s Song written by Amanda Rose Taddeo. Sebastian’s Song is part of a larger project of Healing Songs for Sebastian.

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Welcome, Michael and Naomi. You are both very special people. I’m delighted to have you as my guest on the Voice of Leadership and Dr. Karen Speaks Leadership. Thank you so much for being here with me.

Thank you so much, Dr. Karen, for having us here. It’s an honor to be with you and to have this opportunity to share our story.

It’s a pleasure to be here.

Thank you, Michael and Naomi. I want to hear your story and I want the audience to hear your story as well. Since we finished listening to the video that you created, tell us a little bit about Sebastian’s Song. How was that song born, what’s the meaning of it, and what’s the larger music project that you spawned from the special song? Tell us a little bit about that.

The day that we were given the diagnosis of Sebastian’s very rare cancer, Myoepithelial Carcinoma, we were admitted to the hospital. It’s a very rare cancer. There’s not much information and we weren’t given much information in terms of what it meant for him. However, in the next couple of days, we learned that it was metastatic, meaning it had spread to his lungs. We were told the prognosis was poor and that it was as scary as it could be. Those were the words we were given.

My background as an artist has always been to bring people together. I felt very desperate in that moment. We were in the hospital for a few days. I was thinking, “How do we share this news with people in a way that serves Sebas but can also serve others as well?” Ultimately, we were asking people to pray. I asked two friends to write and share a song for Sebas that I could first sing to his cells. I thought if I could sing to his cells, they would hear that. They would understand it as a prayer of mine.

Knowing that my voice would never be able to carry as long as we would need these prayers to continue, we asked others to then record themselves singing these songs to make a collective song of healing. It’s beautiful. We got submissions and responses from people all over the world. They’re sung in Arabic, French, Mandarin, and Spanish, of course. It is a song for all of us.

That’s beautiful. I love that story and I love the way that you brought music into it. We all know that music is very powerful. It can touch the soul and spirit, and move things around in a supernatural way. It’s quite an important medium and a healing medium that you’re speaking through song. Thank you for sharing the story of Sebastian’s Song. People can still add to the song even today. Is that right?

That’s right. We would love that, and people could share the song with others who may find comfort in it as well.

That’s beautiful too. Even though it’s Sebastian’s song, other people or children who may be going through a similar situation can also benefit from this healing artwork that you’ve put together. Thank you so much Naomi for sharing about that. What about the video itself? What prompted the two of you to create this video about Sebastian’s story?

We created this video to show people what we were fighting for as a family. We’re a very private family. Before this, we had never shared a lot of personal photos online or anywhere. However, we felt that if we were going to describe, explain, or illustrate what it is that we’re fighting for when we’re fighting for our son and to find a cure, we wanted to share some of our most cherished memories. It is ultimately a portrait of our family to honor all other families that might be going through this, that they might see themselves in these memories, and what it means to fight for your family.

It’s a very inspiring video. I remember when I first saw that, I was very touched and moved by your story and by your situation. It prompted me to say, “What can I do that might help?” Even just to get the word out right now. Thank you for creating the video and for getting out of your comfort zone to share maybe more of your life than you’re accustomed to sharing. I know that other lives are going to be touched and impacted as a result of that. Michael, we haven’t heard too much from you yet. What else would you like to add at this point?

I think the power of video and images is something that resonates with most people. By sharing images and videos of Sebastian when he was an ordinary healthy child, who loved playing with his older brother Santiago? We love playing with trucks and balls, jumping on trampolines to show those images while also showing the reality of his chemo treatment in the hospital was our way of trying to connect with other families whose children have faced this horrible disease cancer. We’re hoping that while this video is a story about us and Sebastian, others can see themselves and their realities reflected in it.

Discovering Sebastian’s Cancer Diagnosis And Initial Reactions

That’s wonderful. That’s outstanding. Take us back to when you first found out that Sebastian had this cancer. I know it was back in October of 2021. Let’s go back there for a moment. How did you find out? What were you told and what did you learn about Myoepithelial Carcinoma at the time?

Last August, our otherwise healthy two-year-old son Sebastian was washing his hands one day and found a lump on the palm of his hand. That came out of nowhere. He’s an active child, learning how to ride a bike. We thought maybe he fell on his bike or he got bit by a bug or something. We monitored it for a few days. When it wasn’t going away, we decided to take him to the doctor. We took him in. They did an ultrasound of his hand and X-ray and they discovered what they described as a solid mass.

They were concerned enough to refer us immediately to a surgeon. The next day, we met with the surgeon who reviewed the ultrasound and x-rays and recommended that we do a biopsy of it to see what it was. His recommendation was since there wasn’t a need for a biopsy, we just go in and remove the entire mass. We agreed to do that. That was in early September of 2021, and they removed the mass successfully. Sebastian went home with almost 30 stitches on his hand and a full arm cast.

The sad part for us was that we had to wait over four weeks to receive a diagnosis of what we were facing. On October 6th, 2024, we got the call that is every parent’s worst nightmare. We got a call from the oncologist saying that our son had cancer. He had Myoepithelial Carcinoma, we use the acronym MEC. We were told to immediately check into the hospital. We did so and that night they did a series of scans, chess CT, and MRIs.

The next morning. We received even worse news. They discovered eleven modules in his lungs, which meant that the cancer had spread from his hand to his lungs. What’s known as metastatic stage-four cancer. The doctor told us that the prognosis was poor for his survival. He would need to begin chemotherapy immediately. That was the beginning of a journey that has been over a year now.

Understanding MEC: Rarity And Treatment Insights

That sounds very challenging and very difficult to hear news that devastating and to know that the cancer had advanced to stage four. You also said earlier that this is a very rare cancer, so not a lot is known about it. It’s a very aggressive cancer and so on. What have you learned about this MEC to date? Tell us about how rare it is, how it is treated, and what happened in Sebastian’s treatment.

The first night we were in the hospital, we did what most parents would do. We go to the internet and do an internet search for Myoepithelial Carcinoma. We found very little. We found a few scientific articles that had been written about it. What we quickly learned was that our oncologist at the University of New Mexico Hospital had never heard of this cancer and had never treated it before. We quickly learned that there were very few physicians and oncologists around the country who had ever seen or treated it.

This is what some scientists have referred to as an ultra-rare cancer. There’s no data and statistics to tell us how this cancer occurs in 500 or 1,000 kids a year. This is a cancer that’s so rare that has never been studied. What we do know is only a few cases a year are diagnosed in the US. There’s a dire need for even basic scientific research into what is Myoepithelial Carcinoma, what causes it, and what is the basic biology of that.

Because that type of research had never been done before, there were no proven treatments. There was no standard protocol and no cure. The chemotherapy that our oncologist treated him with was essentially throwing any chemo at it that they thought might work. He endured ten rounds of grueling chemotherapy over eight months. He has had four surgeries and is now considered in partial remission.

Impact Of Cancer Treatment On Sebastian And The Family

Great news about the partial remission. I’m glad to hear that. Chemotherapy is difficult on anyone and adults too. For a child, this must be extremely hard to go through. Tell us a little bit about what’s been the impact on your family on Sebastian going through those ten rounds of chemo.

Dr. Karen, I want to thank you so much for acknowledging that because chemo was never designed for children and growing bodies, and yet we are forced to go ahead with that treatment because it is the only treatment available. Many times, it does not work anyway. Within those eight months, he went through these ten brutal rounds. With each round, he needed multiple blood platelet transfusions.

Chemo was never designed for children and growing bodies, and yet some are forced to go ahead with it because it is the only treatment available. Click To Tweet

He reached the threshold where you start to worry about hearing loss, heart damage, liver and kidney damage, and permanent damages that cannot be reversed. These are all the risks that parents take when they agree to this treatment. That is why looking for different cures and different options for treatments is so important to us and has become our passion. Only 4% of the national budget for cancer research in general goes to pediatric cancer research. If you have a rare cancer like ours, that means 0%.

What happens and what we learned in this journey is that the burden of finding researchers to do that research and funding it all goes down to the families. That’s why we knew right away we would need to start a non-profit organization so that any other family who gets this diagnosis has a place to go for information and a resource to connect with other families and learn from their treatments, what may have worked and may have not, so that we can champion and spearhead research into MEC.

Fundraising For Cancer Research: A Family’s Dedication

It’s quite a burden. I’m thinking a family is already going through so much and you’re dealing with your precious child and all the side effects and so on, then to have the burden also of having to raise funds for the research of the very cancer that your child has. One of the things about your story that I think is quite profound is that you were not only thinking about your child Sebastian, but you’re also thinking about other children and other families who are going through this as well. Tell us a little bit about the research project, how that works, the partners who are involved, and what are your goals in the fundraising.

Shortly after our son’s diagnosis and after learning that virtually nothing was known about MEC and there were no proven treatments, we set a goal for ourselves to change all of that. We’re going to do everything in our power as any parent would to save their kids’ lives. Both of us come from nonprofit and advocacy backgrounds. That’s where we went to first.

After recognizing that there was nothing known about MEC, we knew that we had to find the scientists to do that basic biology and research. We were very fortunate early on to be recommended to a non-profit research lab in Portland, Oregon called the Children’s Cancer Therapy Development Institute, CCTDI. They do Cutting Edge. Scientific research into finding treatments and cures for pediatric cancer. We got in touch with them. After their executive director heard our story, he took it upon himself to do some of his own research on us and came back to us within only a couple of days.

He said that he had an opportunity to learn more about us and our personal stories. Since we have dedicated our lives to giving back to our communities, this was karma coming back to us. At that point, he offered to take on the first-ever MEC research project in the world. We entered into a collaboration and partnership with CCTDI. That type of research takes funding. As Naomi mentioned, the burden of raising those funds falls on the families. Early this year in April, we started a GoFundMe campaign where we reached out to our friends and family and our personal and professional networks, and asked for funds.

We also knew that this was going to be a long journey. You can imagine trying to research a cancer that has never been studied and to find a cure for that cancer is going to take years. Our goal was to ensure that Sebas keep fighting until we find that cure. We made the hard decision at that point to start our own non-profit organization, which is called cureMEC.

The goal of cureMEC is to raise the funds necessary to fund the research into finding treatments and eventually a cure for MEC. We also have a goal of bringing together other MEC patients and families with the goal of building a network of MEC families and patients who can not only learn from one another but also support one another through our cancer journeys.

Lastly, we learned that so few funding was going towards pediatric cancer research, and based on our own experience, are having difficulties getting second opinions. Our third goal is to ensure that patients and families have access to the information that they need to make informed decisions about their children’s treatment. We’re embarking on various policy initiatives in New Mexico and supporting Federal legislation that would increase Federal funding for pediatric cancer research.

That’s phenomenal and I have to say your website cureMEC.org is excellent. It does a good job of clearly describing what MEC is all about and talking to families in a language that they can understand and have a little bit of a roadmap about where to go and what to do in their fight against this disease for their child as well. I want to applaud you on the website that you’ve created and the information that you’ve put on that website.

We walked in the footsteps of other families who have had to walk this journey with other different rare cancers. We’ve had mentors that we’ve been fortunate to have been taken on in that way for guidance.

That’s phenomenal. Let’s talk a little bit about the goals you have financially with the fundraising and how people can give to the cause. Would you mention something about that now so people understand the scope of it, how big it is, the funds you’ve already raised, and the various ways they can participate?

Our project with the Children’s Cancer Therapy Development Institute right now is a three-year project and the budget for each year is $300,000. It’s a total of $900,000 for that project with the Children’s Cancer Therapy Development Institute. Last week, we granted them our first grant of $67,500 and we’re excited for the work that’s already been underway in terms of the research. We’re also going to be looking into other avenues in terms of researching different treatments that are worth exploring. We’ll continue to raise additional funds. Our focus right now is to make sure that that project with the Children’s Cancer Therapy Development Institute is fully funded for those first three years.

That’s great. How can people get to the right place and give?

Our website is cureMEC.org You can donate directly there. We are a non-profit. We are fiscally sponsored right now as we await our 501(c)(3) approval, but all donations are tax-deductible from our fiscal sponsors. They can make donations directly to that site.

That’s phenomenal. Thank you so much for sharing that. It’s amazing to me that you have already collected the amount of funds you’ve collected and given your first donation to the research institute to start the work right away. That speaks to your commitment to your heart for your son and other people as well.

Journey Through Cancer Treatment As A Family

One of the things I know is that going through a journey like this is not easy. It’s very difficult. It’s hard on the family. You’ve had to at times move to California to get treatment for your son and so on. Tell us a little bit more about what has been the impact on your family and on your older son Santiago to go through this as well.

There’s a saying in the cancer community that cancer patients are warriors and they are heroes. That is true, and it is also absolutely true of their siblings. A cancer diagnosis asks a lot from all members of a family. Santiago is just fifteen months older than Sebas. He’s four years old now and Sebas is three. For those eight months of cancer treatment and chemo treatment, we spent a lot of nights in the hospital for chemo, but we spent a lot of nights in the hospital for infections that he got related to his chemo.

With each cycle, we were always re-admitted for at least 5 to 7 days for an infection, which meant ultimately, we spent two-thirds of our nights away from Santiago. That feeds a wound that will always be there. The two brothers have an incredible relationship. They love each other so much. Yet, as parents, the truth is we could never be enough. It is impossible to be enough in that situation because of what is asked.

Since we’ve been able to come home, we’ve worked on, as a family, our relationships and being there for each other, taking care of one another as much with everything that we have as we can, and ultimately, to be as grateful as we possibly can for the moments that we have together. I would have never imagined to say there’s anything beautiful about cancer. Yet you are giving an incredible gift of perspective to appreciate that every day is a miracle and it is a gift. We are so fortunate for the many that we have and we’ve had.

Every day is a miracle. It is a gift. Be fortunate for the many you have and you have had. Click To Tweet

That is well said, every day being a miracle and a gift. The whole notion of redeeming the time, all of us ultimately are leaving here. Some of us don’t think about it and we aren’t aware of it. To be aware of the fragility of life and how important time with your loved ones is and to create those memories, you guys are doing an excellent job of that in very difficult circumstances.

It has been quite a journey. It’s only been a year much longer than that. One thing I’ll mention is that shortly after his cancer diagnosis initially treated at the University of New Mexico Hospital, as any parent would, we wanted to give Ssebas the best chance of survival. For us, that meant seeking the top experts in rare children’s cancers. We made the difficult decision last November to transfer his care from New Mexico to Stanford Children’s Hospital in California.

What that meant for our family was that Naomi had to quit a job that she had recently started. I had to go on a leave of absence from my work. We had to pick up our lives and move to California. We were so fortunate to have Naomi’s mother who happened to be visiting us from New Jersey at the time of his diagnosis.

We were so fortunate that she was able to travel with us to California. She was the one who was watching Santiago during those long days and nights that we were at the hospital and going back and forth rotating. One person would stay at the hospital with Sebas. The other parent would go spend some time with Santiago. We were so fortunate to have Kathy with us during these very difficult times.

It’s been a sacrifice. It’s been a difficult journey, but as Naomi mentioned, every moment with our children our priceless. They’re so precious. We can’t take enough pictures and videos because you never know what will happen. We want to be able to not only remember the memories that we’re building today. We want to have those pictures and videos to carry with us long into the future.

What a beautiful story about your mother-in-law helping at that time. It’s wonderful that Santiago was able to spend time with his grandmother rather than a stranger. It shows also the power of family in times of crisis and the love that you were able to share together during that difficult time. It was no accident that she happened to be with you at the time that you heard about the diagnosis.

Sometimes God knows what we need and he sends support in advance. We might not know why the person is there. However, it gets revealed ultimately why they’re there and it’s like perfect timing. It’s so good that she was able to drop everything and go with you to California. That is a blessing of huge monumental proportions.

Throughout this entire journey, we have been shown so much kindness from many people that we know and that we don’t know. All we wanted to do was to be able to create a wild child. We feel that in the way that we were able to physically cradle him, we were being cradled by a community. Grief is so hard, yet for us, the way that we’ve been able to sustain our strength and our faith is by letting other people carry it with us. That is a lot to ask and at the same time, we are so unbelievably grateful.

Grief is so hard. Nevertheless, the way we have been able to sustain our strength and our faith is by letting in other people to carry with us. Click To Tweet

That’s an important thing you said about the community of people who will come alongside you so far, and I think are still coming to support you in this journey because this is a huge lift as difficult to do alone. It’s not intended that anyone should have to go through this alone. I love your heart to acknowledge with gratitude what people are doing, how they’re pouring in and loving you through the situation and circumstance.

We are certainly inviting people who are tuning in today to also step in and continue to love you through this process. Naomi, in your case, being an artist and particularly being involved in community art, you’ve used your creative genius already with Sebastian’s Song and putting that together. What other ways are you using your creativity and your art to walk through this season?

I remember one time when we were in California and it was a particularly rough day. I was there with my mom. I was going to visit Santi. Michael was at the hospital with Sebas. I don’t know what it was but I was having a hard time and I was pretty emotional. I don’t know what I said, but I remember what my mother said. She said, “You’re going to have to make something with it.” Ultimately, she was speaking of the grief that we’ve been holding.

Recently, I put out a letter that I wrote, which is A Request for Beauty on Behalf of My Broken Heart is the title. It is a letter born of my grief, but truly inspired by deep gratitude and the greatest love. It’s about asking people to enter into my grief. My grief is about my son and it is also about all of our children and all of us moving forward in this world with the devastation of climate collapse and the cost of our current way of living, what that means for the Earth who I consider to be my mother. It’s a request for people to respond to that letter by sending materials. I’ll just leave it there.

It’s a creative project because you’re asking for people to send in naturalistic materials. We know you’re going to build something phenomenal about it and with it. I’ll say this is a vehicle for moving through the grief, not necessarily staying in it permanently, but to be able to travel through it, come out the other side, and be enriched in any case. It’s a project of love, light, hope, and a journey. You’re using your talents and your gifts to create that.

We’re going to build a physical boat with these materials that get in. The boat is a place to invite children to dream in that space and to invite people who are in that precious place between living and dying, people who are ill to come and dream in it as well. We’re going to make with these dreams something that’s truthful that we will be able to share with everyone.

That is beautiful. I love that. It’s no accident that you’ve been given these tremendous gifts that you’re using at this time. That’s a blessing. Michael, in your case, we know that your career has certainly prepared you for this time as well. What are some of the work-related skills that you’re now repurposing for the benefit of your family in this season?

One thing that I’ve learned about myself is that I process grief and these kinds of challenging times differently than others. The only way that I’ve been able to get through a single day is to stay busy. For me, this is a time of action. We were told early on by a friend and colleague that this was a time of action and it resonated with me.

Over the last year, I have been spending any spare moment I have in helping to develop this organization, cureMEC, drafting content, drafting social media posts, trying to connect with legislators, developing a strategic plan for the organization, and fundraising plans, all in coordination with Naomi. We have a tremendous team of volunteers who have stepped in to help us every step of the way.

There are times when I need to spend time in nature. That’s how I ground myself, whether it be in the front yard, going for a walk, going on a kayak on a lake, or going camping. All of which, we take our children with us. Those outdoor experiences and spending time with Mother Nature have enabled me to keep going. As you can imagine, this is a very challenging time. If I even spend a minute thinking about what could happen next, I get very emotional.

My way of coping has been action. That’s finding scientists to partner with and figuring out how to get more donations in. That’s been some of the coping mechanisms that I’ve used over the past year, but it’s the skills that I’ve gained throughout my advocacy career, how do you bring people together around a common cause, how do you raise money for that cause, and how do you put plans into action.

As you said in your introduction, I feel that my years of advocacy work truly have been in preparation for this moment and we’re doing all that we can. We’re in a race against time. We’re so appreciative of these types of opportunities to elevate not only Sebastian’s situation but also the broader topic of pediatric cancer, something that we had never thought about before, but there are so many children and so many families being impacted by cancer. Children are our future and we need to prioritize them. One way to do that is by ensuring that the scientists have the resources they need to study pediatric cancers and find a cure for them all.

I think it’s significant Michael that you spent a lifetime so far being a community organizer and bringing partnerships together. Having that talent of knowing how to set up a nonprofit organization, the average person would have no clue how to do that, and to be able to do it so quickly is amazing that you have been able to do that. You’re using your skills to stay in action and to keep this at the forefront.

As you said earlier, there is essentially zero funding for this type of cancer already out there. I appreciate too that you talked about what you’re doing to replenish yourself, like the time in nature, the walks in nature, and having the boys to go with you as well. What else would either one of you like to share about what you’re doing that’s feeding your soul right now for this season?

I think making memories with the boys. Our boys love monster trucks. We took them to a Monster Jam truck show and they they got all decked out, wearing race car driving outfits. It was a special experience and it honored their dreams which right now focus on anything with wheels, just creating memories like that. That was more extravagant but whether it’s like we’re going to have a picnic in the living room and a pizza party. It’s thinking about celebrating. I think that’s something.

Celebrating Sebastian’s Spirit And Character

I love that you’re celebrating. When you watch a video, you can see the spirit of both of your boys, which is delightful. Tell us a little bit about Sebastian, what he’s like, and what there is to celebrate in this precious little boy.

I’m smiling from ear to ear because there is so much to celebrate with him. He is a free wild spirit. I would make up songs where the verses about him would be his eyes. He’d be looking at the sky and his head in the clouds, or right all the way to the ground, looking in the dirt. He has a wonderful imagination and is hysterical in the way he talks about things. He has an amazing vocabulary and he can use it very well to charm people or to persuade people, as Santiago as well.

Ultimately, I will say this. He has the biggest heart. When he loves, he loves with all of it. After he’d be fasting all day and had to go through a procedure or surgery, he would be getting out of the post-anesthesia unit and they would offer him a popsicle. He would want to save that popsicle for Santi. They would give him these little Hot Wheels Cars when we would go for any appointment he would have, and the child life specialist there always knew that he had to get two cars and he would always give Santiago whatever car Santiago wanted. He looks out for people. He looks out for all of us. He’s incredibly thoughtful and loving, and we are all better with him.

Words Of Encouragement For Families Facing Similar Challenges

That is so wonderful. It sounds like he has a generous heart just like his parents. It’s going from one generation to the next. I love that story. I know in the video, one of the scenes I enjoyed watching, and I’m sure he’s seen this done many times. He had that stethoscope and he was so serious with heart reading. He looks like he knows what he’s doing. He is a very bright and delightful child. I’m so glad you have so much to celebrate in him at this point. Let me ask this. Some families are going through this What encouragement would you give to other families who are in this season? I already heard you say to make memories and celebrate. What else would you share with them?

Given how much we have been given by connecting with other families who have gone through similar journeys, see if it’s possible to reach out or if it’s possible to be connected with other families who are struggling in the same way. We offer ourselves in that space because we do feel invisible in this space. It is incredible to meet others and immediately feel seen. We would like to do that for them.

It’s an incredibly lonely feeling to be a parent of a child with cancer. No one fully understands. They can imagine, but unless you’re in it, you can never imagine the nightmare that we are living. Other families who are going through this, we want to be able to connect with them. We encourage them to connect with others so that they don’t feel alone. They aren’t alone. We are a community.

It is an incredibly lonely feeling to be a parent of a child with cancer. No one fully understands unless they are in it. Click To Tweet

One thing we’ve learned is that the pediatric cancer community is incredibly close. We had an opportunity to travel to Washington DC to attend what was called Cheer Fest, which was an event for families and children who are fighting cancer. It was the first time that I didn’t feel so alone being around this wonderful community. Many of the parents have lost their children, which was incredibly sad. There are others whose children are still alive and fighting. Having those connections with other families has been incredibly important for us.

Prayers, Donations, And Support For Sebastian

I loved the fact that you have created that community through the website as well. Again, that is cureMEC.org. People can go there, join the community, get support, and support each other through this journey. Let’s say again what people can do to participate. One thing I’m going to ask my community to do is to pray for a miracle of healing. We were talking to a predominantly faith-based community today and I know that there are prayer warriors out there, so please pray for Sebastian and please pray for other children who are going through situations like this.

Secondly, this research is so important. Being able to donate funds for the research is another way people can participate. They can record a song and add to Sebastian’s Song. You play that song for him as part of his healing therapy and his healing journey. What else would you say people can do to make a difference?

For information on how to record and submit a song, they can go to our website, cureMEC.org. There’s a page specifically for Sebastian’s Song. Another thing, we’d encourage people to do is if you are on social media, follow our page on Facebook, Twitter, and Instagram, and please share our page. The more that we can get our story out there into the world, the more that people will understand what we’re going through, and help them understand the broader plight of children who are fighting cancer. That’s another thing that people can do.

I would add the prayer requests. On December 6th, Sebastian will be going for his next round of scans. Partial remission means that there is still cancer in his body. We’re very worried about the next scans. I think that’s the case for any parent when they are getting ready to go for scans. Those prayers mean the world to us. We’ll be asking people the night before December 5th to light a candle on December 6th. We did that last time. We feel like those lights will connect to our light and ultimately will send healing and faith out to our boy.

Words Of Wisdom For Corporate Executives

Thank you for bringing that up as well. We’ll be sure to promote it on that day too so people can be reminded of that opportunity. As we’re hastening to a close at this point, our audience is predominantly corporate executives. What words of wisdom would you like to leave to that audience of corporate executives?

They say children are our greatest teachers. Sebastian has epitomized that for us. He’s touched so many people. He’s opened up his heart to them and they opened up their heart to him. One thing that folks can think about and practice is if there are children in their lives, whether it be their own children or their friends’ children, to connect with them and open up your hearts to them. They can teach us so much if we pause for a moment and let them fill our lives with joy.

Children are our greatest teachers. They can teach us so much if we just pause for a moment and let them fill our lives with joy. Click To Tweet

The other thing I’ll mention is that one thing we’ve learned is that the power of play is so very important and the power of joy. When Sebastian would come out of chemo treatment, he would be tired and sick. He would see his brother and they would start playing. It was the power of play and joy that I think was able to get him through the chemo and was able to get us through it as well. Get out there and play and experience joy.

Enjoy the children and learn the lessons from them. I love that. Thank you for sharing that. Thank you, Michael and Naomi for being here with me today. I hope that many people will join in the community and make a difference with you.

Thank you so much, Dr. Karen.

You are welcome. I’d like to close this segment today with the Bible verse. It comes from Matthew, the 19th Chapter, verses 13 and 14, “The little children were brought to him that He might put his hands on them and pray, but the disciples rebuked them. Jesus said, ‘Let the little children come to me and do not forbid them for of such is the kingdom of heaven.’ He laid his hands on them and departed from there.” My prayer is that God will touch little Sebastian and lay his hands on him just as Jesus laid his hands on the little children in this account. We know that God loves children and cares about the children. We’re praying for a miracle of healing for Sebastian.

 

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